When life gives you CF, you do whatever you can to fight for a cure. For Meghann and her husband Bryan, CF became their life when their eldest daughter, Claire, was diagnosed at 17 days old. That was in the Spring of 2017 and in the early weeks of adjusting to their new life as both first time parents and caring for an infant with CF, they serendipitously came across a flier for a Vivian Lee Foundation event. Since then, they have made it their mission to support raising funds and awareness for CF.

In addition to supporting VLF, Meghann is also a Family Partner in Quality Improvement with the Cystic Fibrosis Care Team at OHSU Doernbecher and fundraises twice annually for the Cystic Fibrosis Foundation (CFF) Great Strides Walk as team Claire’s Crew and for their Gala Auction. Meghann and Bryan are fortunate to have made careers out of a passion as they both work in the wine industry. When they’re not hustling to beat CF or walk the vines, they enjoy weekend getaways to the coast and playground hunting with Claire and younger sister Ava.

Vanessa has been a volunteer with the Vivian Lee Foundation since 2018 and in 2020, she also became a market vendor with her small business, A Branch & Cord, where she hand-makes macrame decor and fiber rainbows. Vanessa runs her small business from home in the Pacific Northwest while she and her husband, Zach, raise their 3 young children Alden, Ophelia & Payton. Vanessa also has 2 wonderful stepchildren, Bailey and Greysen. It's never a dull moment in their household!

I’m Sarah—a birth doula, yoga teacher, and mom of five. My youngest, Connor, was diagnosed with Cystic Fibrosis in 2016 at just one month old, a moment that changed our lives forever.

Finding community has been everything. At the first Breathe Easy Retreat, I realized how much I needed the connection of other CF moms—their strength, love, and understanding. When the Vivian Lee Foundation supported my family during a tough time, I felt firsthand the power of being lifted up. Now, as a board member, I’m honored to give back and support other CF families.

Caregiving is at the heart of who I am. Whether through birth work, advocacy, or simply showing up for others, my mission is to hold space, offer strength, and remind others that we’re never alone on this journey.

Grace Jenkins is a stay-at-home mom to Lucy (5) and Elliot (2.5). Her son Elliot was diagnosed with cystic fibrosis at just nine days old, and walking alongside him on this journey has given her a deep passion for advocacy, awareness, and supporting the CF community. Grace brings her personal experience as a CF mom to her work with the Vivian Lee Foundation, believing strongly in the importance of research, resources, and community connection for families navigating life with cystic fibrosis.
Before becoming a full-time mom, Grace worked in a variety of fields, including finance, insurance, and retail, where she developed strong skills in communication, organization, and problem-solving. Outside of her family and advocacy work, she enjoys crocheting, reading, and catching Broadway shows or concerts. She also has a soft spot for lighthearted reality TV. 

Christy is mom to Vivian Lee, 10 years old and sister to Willa and twin Graeme.Vivian was diagnosed with CF at just 9 days old, and it has been her passion and drive to do everything in her power to fight for her daughter and others living with CF. She is able to use her passions and experience as a professional photographer for design, art, and raising awareness for CF through the Vivian Lee Foundation. It is Christy's hope that we will see a cure for cystic fibrosis in Vivian’s lifetime.