Caring for a child with cystic fibrosis (CF) can be overwhelming, isolating, and emotionally draining. At the Vivian Lee Foundation, we believe no caregiver should navigate this journey alone. Our Support Group Programming offers a safe and welcoming space where CF caregivers, sibilings and families can connect, share experiences, and find encouragement from others who truly understand.

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Ongoing Support Groups

Our virtual and in-person support groups provide a judgment-free environment where caregivers can discuss challenges, share advice, and receive emotional support. Led by experienced facilitators, these sessions cover a range of topics, including managing hospital stays, advocating for your child, balancing self-care, and navigating the emotional toll of CF.

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Breathe Easy Retreat

The Breathe Easy Retreat is a transformative experience designed to give CF moms a much-needed break from daily caregiving responsibilities. Hosted in a peaceful, restorative setting, this retreat offers a blend of wellness activities, expert-led workshops, and peer support to help caregivers recharge, connect, and gain new tools for resilience. Moms leave feeling empowered, supported, and ready to continue advocating for their children with renewed strength.

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Through our Support Groups & Retreats, we foster a strong community where caregivers can find understanding, hope, and lifelong connections. Whether through regular check-ins or immersive retreat experiences, our goal is to uplift and empower CF families every step of the way.

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Interested in joining a support group or attending the Breathe Easy Retreat? Check out our Events page or sign up for our email newsletter!