Programs
Supporting CF Families Beyond the Diagnosis
​
The Vivian Lee Foundation provides holistic support to families navigating the challenges of cystic fibrosis (CF). Through financial assistance, caregiver retreats, emotional support groups, and activity grants, we address the needs of the entire family—not just the patient. Our programs offer relief, connection, and empowerment, ensuring that no family faces CF alone.
Family Assistance Program
The Family Assistance Program provides financial relief to families facing the high costs of cystic fibrosis care, covering expenses like medical travel, treatments, and essential equipment. By easing these financial burdens, we help families focus on their child’s health and well-being.
Support Groups & Events
Our support groups and community events create safe spaces for CF caregivers to connect, share experiences, and find encouragement from others who understand their journey. Through retreats, social gatherings, and peer-led discussions, we foster a strong, supportive community that no family has to navigate CF alone.
Salty Life Activity Grants
The Salty Life Activity Grants give children with CF the opportunity to participate in enriching activities that promote joy, growth, and normalcy. These grants help cover costs for extracurricular programs, sports, and experiences that allow CF kids to live life beyond their diagnosis.
Resources
We provide essential resources to help CF families navigate the complexities of care, from educational materials and advocacy tools to mental health support and practical guides. Our goal is to empower families with the knowledge and support they need to confidently manage their child’s health and well-being.
